👥 Contacts
Research participants and stakeholder contacts • View CSV →
146
Total Contacts
129
End Users
14
Clinicians
76
With Email
24
Signed LOI
📊 Contacts by Type
63
End User (Quad)
43
End User (Non-Quad)
23
End User
14
Clinician
3
Caregiver
📋 Contact Directory
End User (Quad)
63| Name | Condition | LOI | |
|---|---|---|---|
| Abby Marsh | — | SCI - Quad | |
| Abby Tamara | jael27888@gmail.com | Spinal fusion | ✓ |
| Adriana Mallozzi | amallozzi@gmail.com | Cerebral Palsy | |
| Alana Theriault | alanarutht@gmail.com | SMA Type 2 | |
| Alex Ghenis | alex.ghenis@gmail.com | SCI - quad | ✓ |
| Alex Pantec | alex.pantec@gmail.com | ||
| Alexander Sing | alexander.f.sing@gmail.co... | Mohr Majewski, Cleft palate | ✓ |
| Allyson | allyson@allysondupont.com | ||
| Alva Gardner | alva@the4-3perspective.co... | Cerebral Palsy | ✓ |
| Angie Lee | angielee@stanford.edu | SMA Type 2 | |
| Bradley Heaven | team@allaccesslife.org | Cerebral Palsy | ✓ |
| Cory Lee | curbfreecorylee@gmail.com | ||
| Curtis Brunn | curtis.brunn@gmail.com | SCI - Quad | |
| Dany Sun | danyellesun@gmail.com | 2 children SMA | |
| Drew McPherson | drewmcpherson25@berkeley.... | SCI - quad | ✓ |
| Ean Price | eprice@technologyforlivin... | SMA | ✓ |
| Elizabette | elizabette@hotmail.com | ||
| Emily Wolinsky | emily.wolinsky@nmdunited.... | SMA Type 2 | |
| Franklin Elieh | franklin@norcalsci.org | SCI | |
| Galen Duff | — | SMA Type 2 | |
| Ian Mackay | — | SCI - Quad | |
| Jade Theriault | jhaileyt@gmail.com | SMA | ✓ |
| Jeannette Kaliska | — | SMA Type 2 | |
| Jessica Keogh | jessicakeogh89@gmail.com | Muscular Dystrophy | |
| Jose D Torres-Vega | jtvega@ccdconline.org |
Showing 25 of 63 contacts
End User (Non-Quad)
43| Name | Condition | LOI | |
|---|---|---|---|
| Andrew Ekelem | ae@evolutiondevices.com | SCI - para | |
| Christina Chambers | — | SCI - Para | |
| Christina Leffmann | rleffmann@thecil.org | 3 Strokes | |
| Dana Lange | — | Hopkins Syndrome | |
| Danny Kodhmur | — | ||
| David Allgood | dallgood@calky.org | SCI | |
| Donna Fox | dfox@calky.org | Rheumatoid Arthritis | |
| Eric Clow | — | SCI - Para | |
| Jeffrey | jeffro97@gmail.com | ||
| Jeremy McGhee | — | SCI - Para | |
| John Benson | — | ||
| Josh Winkler | jkwinkler@gmail.com | ||
| KC's neighbor | — | MS | |
| Kim Halastra | — | Pigeon Toe/Knock-Knee | |
| Krystina Jackson | krystina@bravemaker.com | SCI | |
| Lashay Canady | — | TBI | |
| Laura O'Leary | futurecrc@gmail.com | ||
| Leah Smith | — | Little person | |
| Leslie Krongold | elkrong@yahoo.com | ||
| Liz Henry | — | ||
| Malcom Daly | malcolmdaly@gmail.com | Stroke Survivor & BK Amputee | |
| Mark Cohen | — | Special Olympics | |
| Mark Logan | bus123@icloud.com | SCI - Para | |
| Matt Tilford | matt@applewesthms.com | SCI - Para | |
| Max Conversa | — | Deformed Leg |
Showing 25 of 43 contacts
End User
23| Name | Condition | LOI | |
|---|---|---|---|
| Alberto Mazario | — | Outpatient PT | |
| Charley Harley | — | https://www.twitch.tv/charlieh | |
| Cory Brooks | — | Plays power soccer, has though | |
| Dawn Howard | — | CP | |
| Ellie Jade | — | ||
| Emily Wolinsky | — | SMA Type 2 | |
| Erin Vallely | — | ||
| Galen | — | ||
| Garrie Wilson | garriew@gmail.com | Permobil M300, is building a l | ✓ |
| Greg Brooker | — | ||
| Karli Dee | — | ||
| Kevin Fritz | — | ||
| Kevin Schaefer | — | ✓ | |
| Living with M.D. | — | ||
| Michelle Franke | — | swing away lateral supports | |
| Moldatu | — | ||
| Morgan Kanninen | — | ||
| NMD Poker League | — | ||
| Phil Wiess | — | Muscular Dystrophy | |
| PhillyDawg2003 | — | ||
| Quinn Bretts Friends | — | ||
| Tatsiana Khivtsko | — | BK & AK Limb Difference | |
| Yoga Anytime | — |
Clinician
14| Name | Condition | LOI | |
|---|---|---|---|
| Aaron | — | ||
| Abraham Ortiz | — | ||
| Bryanna Fedorka | bfedorka@selectmedical.co... | ||
| Carlos Garcia-Cuesta | — | ||
| Daniel Vance | — | Team Gleason | |
| Deniz High | — | ||
| Emily Gee | — | ||
| Jordan Dangerfield | — | ||
| Pablo Callejo Goena | — | ||
| Phill Forostenko | phill@beartrap.com | ||
| Sam Mallad | — | Headrest that can be adjusted | |
| Sarah McCabe | — | ✓ | |
| Shannon Comopoton | — | ||
| T.K. Small | tk.small@nmdunited.org | Government Affairs & Operation |
Caregiver
3| Name | Condition | LOI | |
|---|---|---|---|
| Dany Son | — | 2 children SMA | |
| Lisa DeNatale | — | Downs Syndrome | |
| Shannon Secrest | — | Deaf & Mild intellectual delay |